Creeper...
Okay if you are reading this its because I have added your email address...I'm sorry its more trouble to sign in and all but today a lady from a syndrome website left a comment after the last entry telling me that she was pretty sure Haley had that syndrome or one of its "cousins"....  While I understand she probably had good intentions by telling me, It was just creepy to me that a complete stranger had read enough to feel as though she could diagnose my child...  Haley does not have a syndrome...we ran every imaginable test on that poor child from the time I was 18 weeks pregnant until she was over 4 and at that point if she had a syndrome we would have known, we saw every imaginable specialist.  Haley has hydrocephalus and some of the side effects of it, that's all...she is our miracle just for being alive.  We love Haley just the way she is and wouldn't change a single thing about her.  While we still see many specialist regularly and of course do all we can to help her achieve every possible goal and milestone we are completely and totally content with her going the rest of her life without any other diagnosis.  Sorry for the soapbox but figured I would explain why we changed things!  Now that you have to go to more trouble to check on us I will try to do better about updating!